The World Mitochondrial Disease Week was on September 18-24, 2023, and we celebrated the week and to spread the mito-message, by opening our doors to the University of Helsinki's mitochondrial research!
The event included a peek to our research work and provided opportunity to discover what is happening in mitochondrial disease research. We were also joined by the research-physicians, who will answered mitochondrial-questions, and those who have encountered with a mitochondrial disease spoke about their experiences. We also had a guided tour in the research lab.
The event was organised both Biomedicum and Zoom webinar.
15:00 Welcoming words: Anu Wartiovaara
15:10 Julie de Luxembourg, POLG-foundation: My experience of POLG-disease and the efforts to promote research (Zoom)
15:30 Pieti Elonkirjo & Tuomas Kukkonen: New tools in mitochondrial research
15:40 Satu Malinen: New astrocytic mechanisms in mitochondrial brain diseases
15:50 Jukka Kallijärvi: Neonatal mitochondrial disease GRACILE
16:00 Questions & discussion
16:10 Rohit Verma: Clinical characteristics of MIRAS disease
16:20 Emil Ylikallio: Mitochondrial disease in the clinics
16:50 Patients and families speak: Kim Storås, Anu Kavonius ja Roger Storås
17:20 Kirsi Asula, NeuroUnion: What a patient union can offer
17:35 Researcher-physicians Emil Ylikallio, Rohit Verma and Pirjo Isohanni answer questions. In case you wish to send your question before hand, please send it by e-mail to the address: mitopaiva-2023@helsinki.fi
18:00 A guided tour to Wartiovaara and Tyynismaa research laboratories (registration)
It was possible to participate this event remotely via Zoom webinar.
The event was organised the University of Helsinki in the Biomedicum Helsinki 1 building. There are few small (ca. 2 cm) steps at the entry door.
The program took place in Lecture Hall 1 which is accessible. The Lecture Hall can be accessed both from the entry floor (floor 1) or the lower floor (P-floor) via lift both step-free. There is room for wheelchairs both in the front and back of the lecture hall.
Guided tour to the research laboratories took place on the 5th floor of the building. There is a lift connection from the Biomedicum Helsinki entry lobby. Laboratory spaces are step-free although sime entries or spaces can be narrow.