The World Mitochondrial Disease Week is on September 18-24, 2023, and to celebrate the week and to spread the mito-message, we will open the doors to the University of Helsinki's mitochondrial research!
Take a peek to our work and discover what is happening in mitochondrial disease research. We are joined by the research-physicians, who will answer mitochondrial-questions, and those who have encountered with a mitochondrial disease. For those participating onsite, we will take a guided tour in the research lab.
Welcome to join us in Biomedicum. Also remote participation is possible via Zoom webinar where the presentations will be simultaneously translated in English.
15:00 Welcoming words: Anu Wartiovaara
15:10 Julie de Luxembourg, POLG-foundation: My experience of POLG-disease and the efforts to promote research (Zoom)
15:30 Pieti Elonkirjo & Tuomas Kukkonen: New tools in mitochondrial research
15:40 Satu Malinen: New astrocytic mechanisms in mitochondrial brain diseases
15:50 Jukka Kallijärvi: Neonatal mitochondrial disease GRACILE
16:00 Questions & discussion
16:10 Rohit Verma: Clinical characteristics of MIRAS disease
16:20 Emil Ylikallio: Mitochondrial disease in the clinics
16:50 Patients and families speak: Kim Storås, Anu Kavonius ja Roger Storås
17:20 Kirsi Asula, NeuroUnion: What a patient union can offer
17:35 Researcher-physicians Emil Ylikallio, Rohit Verma and Pirjo Isohanni answer questions. In case you wish to send your question before hand, please send it by e-mail to the address: email@example.com
18:00 A guided tour to Wartiovaara and Tyynismaa research laboratories (registration)
It is possible to participate this event remotely via Zoom webinar via this link: https://helsinki.zoom.us/j/64848749384
The main language of the event is Finnish, and via Zoom it is possible to listen the event to be simultaneously translated into English. You can select which language to listen in the Zoom webinar by selecting the preferred language from the "Interpretation" button in the control panel.
The event takes place at the University of Helsinki in the Biomedicum Helsinki 1 building. There are few small (ca. 2 cm) steps at the entry door.
The program takes place in Lecture Hall 1 which is accessible. The Lecture Hall can be accessed both from the entry floor (floor 1) or the lower floor (P-floor) via lift both step-free. There is room for wheelchairs both in the front and back of the lecture hall.
Guided tour to the research laboratories takes place on the 5th floor of the building. There is a lift connection from the Biomedicum Helsinki entry lobby. Laboratory spaces are step-free although sime entries or spaces can be narrow.